Fear and Something Else to do with Fathers

Right now I am lying in bed as I type this, trying to figure out a cohesive way to write what is on my mind. It probably won't happen, but here it is for better or worse. I apologize if it is a  random train of thought.

Tomorrow morning at 7:30am EST my father heads in for surgery to repair a damaged vertebrae (C5) in his neck. It is the first of at least two major surgeries, and could take two days to accomplish. Why so long? Well, he also has a rare bone tumor that has destroyed that vertebrae as well as encapsulated a major artery to the brain and is impinging on several other nearby structures. Like his esophagus. His vocal cords. Oh, and a whole mess of nerves that lead to his arms. Oh, and he has osteoporosis to top it off.

This egg-sized tumor is called a Chordoma, and has been growing there since, well, probably since before he was born. The theories are that something went wonky in the bone cells as he was developing and they just kept growing, albeit very slowly. Tumors like these are incredibly rare; in the US, only 300 people a year are diagnosed with them. Having a rare bone cancer is bad enough, but this is the rarest of he bone cancers. Chordomas also are usually found at either end of the spinal column, not along the neck like his. Go figure. Seems pretty typical for the family though. We seem prone to living "interesting" lives.

The first surgery is to repair his vertebrae so it doesn't break and leave him worse off (either paralyzed or, well, dead). The plan at the moment is to fuse C2-C7 (his whole neck) and possibly down to T2. Plus add several rods for strength. And a bone graft from his hip to boot. This might take 2 days depending on how things go during the operation, as there is always a certain amount of unpredictability here. Did I mention that he has a team of, I believe, 8 different doctors? He has a lot of confidence in them, so I have to trust his feelings on it. I would like to be there for additional moral support, but we just can't swing a trip across the country for potentially several months right now. So it falls to my mom and sister to be his support. I wish we could be there though. The second (or third) surgery will be to actually remove the tumor. Then after a short recovery, five MORE weeks of radiation. Then lots of physical therapy since he won't be able to turn his head, and hopefully he WILL be able to play music again.

My father is an excellent musician. Growing up, we were surrounded with music and art (my mom is an artist), and we learned to play different instruments from a young age. While I don't play like I used too (I really miss playing piano and other instruments), I still have a love for music. It really speaks to my soul, and has the ability to completely change my moods. I would be terribly sad if he could not play again (as would he, obviously!)

I have so much more on the subject to say, but I am getting tired, and tomorrow will be a stressful enough day as it is that I really need some sleep. Plus some quality cuddling time with my fabulous husband while the kids are snoozing.

Do I dare write down my worries? If I acknowledge my fears, does that give them more power to actually happen? There is power in giving things a name, but who will that power best serve? I am afraid of losing my dad. We have finally become much closer after years of being somewhat aloof. And I would hate for all those amazing experiences he had as a child/teen to be lost since he is the repository of so much family history. I want him to play mandolin to my children and tell them of his boyhood, and escaping the Nazi as they swept through Hungary. Be strong Papa, we aren't done with you yet. We love you.

Another Holiday Gone...

Another holiday has come and gone. Happy Thanksgiving. I'm actually feeling somewhat sad today. Granted, we are staying with the in-laws, so it isn't as though we are without family. I am just missing my own family right now. Last night we drove from our house in the city to the semi-rural place my husbands' parents own. Through a snow and ice storm with an antique armoire in the bed of the truck, which was packed to the gills.

I did get a few nice sunset photos, although they don't do justice to the real thing.

It wasn't as bad as some storms we have driven through. The snow was light while the winds were only at about 20 mph. The road was pretty icy and the temperature was 6 degrees. Somehow it seemed like it wasn't too bad for all that. No sliding on the black ice, no wrecks to navigate around, no drifts of snow across the highway. We all made it in one piece (as did the armoire), unpacked, and collapsed into bed.

I really enjoy cooking, if you didn't already know. Normally, we would cook a great mealk at home, with one of the family members present (for the last few years it has been my sister). We would bake, and have a relaxing day with food, family, and the craziness that the kids bring naturally. This year was already going to be different though. Since we are trying to move forward with slowly packing the house so we can sell it and staying with the in-laws for the majority of the time we would not be hosting this year. This past Monday we had to travel to the house so that Greg could have a hole in the roof of his mouth fixed (a pretty painful surgery, and maybe a story for another day), and Tuesday Claire was going to have a cavity filled. We were planning to come back Wednesday. Since there would really not be enough time for us to cook a great meal, we went with Plan B: Let my IL's order from the place they usually do for the holiday, a cafeteria-style chain. We decided it was worth not having the stress of cooking and baking especially since we would be travelling, and would just deal with the foods that aren't really on our diet anymore. I also thought I would just run to the store the day after we got back to pick up some sweet potatoes/yams and cranberries so we could at least have some good side dishes that we all liked.

About halfway here, I realized that that the day after we returned would be THANKGIVING. It seems that my grand plans to supplement our meal were foiled by my own distractions with our most recent trip. No way I was going to the store this morning and dealing with the hordes of crazy people buying last minute groceries. Yuck.

This morning it was 10 degrees out as we milked Alice and took care of the goats. I took some photos, but they don't quite convey the cold.

I spent some time talking to my family this morning when the in-laws went to pick up our meal. I feel somewhat adrift already, with the house being so unsettled, but especially with not seeing anyone from my family since February. We try to visit a few times every year, but this year has been especially bad for that. My father was diagnosed with a very rare bone cancer called a Chordoma in April (he has been unwell since March or so). Since then, he has been trying to seek the appropriate treatment which has been a challenge. After many months of dealing with insurance, etc. he is finally getting the treatment he needs. He just finished an intense course of radiation, and the surgery to repair his neck (one vertebrae is entirely gone, and several others are very weak) is scheduled for Tuesday. Less then a week later is the surgery to remove the tumor. Both are pretty dangerous, since the tumor has taken over a vertebrae, a major artery to the brain, and who knows what other structures.

He has been staying with my sister during radiation treatment, across the country from where he and my mom live, since that is where one of the major centers to deal with Chordomas is (in Boston). My mom is travelling tomorrow to be there for the surgery. Which leaves me and my little family here. Not being able to be there for support and to spend time together. Hence, my sadness.